Fatigue is very bad lately… I actually got winded going up my stairs to my bedroom last night, heart pounding, out of breath and energy sapped, like I did when I weighed 50 pounds more than I do today.

Not sure if it’s related to KTS issues, but it sure sucks.

I cannot WAIT until February 9.

And can I just add that I’m a little tired of encountering online information about port wine stains and KTS that treat it like a pediatric condition?  I mean, yes, I realize that it’s congenital… but at the same time, it’s not just a kids’ problem, and I have chatted with a few folks who get diagnosed as adults.

Gah.

Hoping and praying that the doctors will know what to do with me.

Sorry for long silence.  Lots going on.  Life is funny like that.

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